If your child is terminally ill, they are entitled to the highest rate of the care component and, from their third birthday, the higher rate of the mobility component. They are ‘terminally ill’ if they have a progressive disease that can reasonably be expected to cause their death. This must be confirmed by a registered medical practitioner or registered nurse involved in the child’s care. The doctor or nurse should complete a Benefits Assistance under Special Rules in Scotland (BASRiS) form. See here for more information about this form. Read the Chief Medical Officer's guidance for doctors and nurses completing the BASRiS form.
Child disability payment can be backdated to when your child was judged to be terminally ill by a registered medical practitioner or nurse providing you claim within 26 weeks of this date. If you claim later than this, child disability payment can be backdated for 26 weeks in this situation.